Monday, July 26, 2010

.....The Next Day, Ups and Downs and Sideways.....

I will dare to provide today's update and trust my dear husband will not delete this as he did my Saturday evening edition. He is without a computer and is not getting any reception in the room even with his iphone, so other than incoming calls to his room phone, his only outside contact was when he called me on my toll-free office phone. And I got a lot of calls as his situation seemed to change by the hour. We decided I should stay home and work in my office, since things are very busy for me. I did manage to accomplish quite a bit for both existing and new clients, but my main client was a certain RJ Moss.

Although he had several visits by docs over the weekend, today brought out the full onslaught from every specialty that has any interest in his situation. He was checked out by the Nephrology team (new kidney's in some distress from this infection), of course the Cardiology and heart failure specialists, Urology, and Infectious Disease docs. Everything seemed to be moving along nicely until his lunch arrived.

Just as he was ready to dig in, a nurse swept in and pulled the tray off his table, telling him he could not eat anything since the cardiologists decided to do a right heart cath and biopsy on him this afternoon. So he called to report this news to me, as he worked on his insulin pump to cancel the insulin that had just been delivered to cover his meal. No reason given for the sudden cath lab plan. Forty-five minutes later he called back to tell me that the procedure was cancelled, when the team remembered he was on the blood thinner coumadin. So he could have lunch after all. He alerted his nurse, but no one could locate his tray, so a new lunch order had to be placed. Meanwhile the Infectious Disease docs dropped by to inform him they had identified the source of his infection, and it was the same bug that caused his last hospital stay in May.....not good. They may be able to come up with some drugs to help prevent a recurrence, until the main culprit can be dealt with: an apparent blockage in the delivery system from the bladder. That does not sound like a fun fix, but he will think about that when the time comes.

My phone quieted down for a couple of hours then, as he needed to rest from all the excitement. When I spoke with him just before dinner, he mentioned that he would not be going to the cath lab until Tuesday afternoon. Excuse me? When did that get rescheduled? Apparently during nap time. Turns out there is some concern that his heart may be having some rejection, based on an echocardiogram earlier today or yesterday. Geez.....

The good news is that he really did not miss my presence today, with all the company he had coming and going. So I got to take care of much needed business, as he did his best to take care of his business of being a healthy person. In spite of all this, he is feeling much better and remains in good spirits. I will take the laptop back to him tomorrow so he can give his perspective in the next post.

Until then, stay tuned and cross your fingers!

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RJ/Bob/Irv is a 61-year-old beloved husband, father, uncle, brother, motor racing fanatic, and Livermore resident who received a heart and kidney transplant in February of 2010. Bob's recent years have been defined by his health, which forced him into early retirement. Unfortunately, many of his days were spent in a dialysis center or at various medical appointments, primarily due to his living with diabetes for over 40 years. Numerous were panic visits to various Emergency Rooms all over California for treatment of chest pain. But now no more dialysis and no more late-night dashes to UCSF! The main focus of Bob's family, friends, and doctors has been a prompt transplant, so that he can get back to traveling with his Sweetie, driving fast cars, enjoying great music and laughing with his friends. This blog will function as a way to communicate with all interested parties and to keep everyone informed. And hopefully it can serve a great purpose also, in making people more aware of the importance of organ donation and how each life saved has a positive effect on dozens of related friends and relatives.