Sunday in the hospital does not make for much of a productive day, but we will make the most of the time to get Robert J up and walking as much as possible. His Prednisone dose has been drastically reduced from 15 mg on Wednesday to just 5 on Saturday, the minimum amount considered safe for him. His Prograf has also stopped for the past 24 hours since he has a very high level in his system still. His docs feel that the drugs are the biggest issue right now in preventing his healing and causing the severe muscle loss, so are working on getting the doses as low as possible without risking rejection.
His smallest wound from the surgery (where the heart bypass machine was attached) suddenly opened last night and began leaking so Dr. H the transplant surgeon popped in this morning and I got to see him at work, installing a single suture to close up the spot. Very impressive in-room surgical procedure, complete with sterile gloves and tools and an enviable sewing technique!
His brother spent several hours with him yesterday, and they walked an entire lap of the 10th floor, which was a great achievement. We'll try for 2 today. We don't expect any other doc visits today, but Monday will be busy with Physical Therapy sessions and a consult from the Urology team (fingers crossed for this one). There was some discussion this morning about releasing him from the hospital to a rehab facility, but we prefer going home and working together on the PT there - I can't imagine a rehab hospital being sanitary enough for a recent transplant patient. Just hope marriage counseling won't be needed with me posing as a PT therapist, but we will have Leslie's assistance also, as she begins her family leave from work this week to help us out.
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RJ/Bob/Irv is a 61-year-old beloved husband, father, uncle, brother, motor racing fanatic, and Livermore resident who received a heart and kidney transplant in February of 2010. Bob's recent years have been defined by his health, which forced him into early retirement. Unfortunately, many of his days were spent in a dialysis center or at various medical appointments, primarily due to his living with diabetes for over 40 years. Numerous were panic visits to various Emergency Rooms all over California for treatment of chest pain. But now no more dialysis and no more late-night dashes to UCSF! The main focus of Bob's family, friends, and doctors has been a prompt transplant, so that he can get back to traveling with his Sweetie, driving fast cars, enjoying great music and laughing with his friends. This blog will function as a way to communicate with all interested parties and to keep everyone informed. And hopefully it can serve a great purpose also, in making people more aware of the importance of organ donation and how each life saved has a positive effect on dozens of related friends and relatives.
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