Yesterday's heart transplant clinic was the usual mess running 2 hours behind by our appointment time of 9:5 am. Some drugs were changed, some added, and some terminated. We were not due to appear at the kidney clinic until 2:30 so we went home for lunch and returned.
The visit was aimed at controlling the pesky leakage from the kidney incision and then to remove my trusty friend, Mr. Foley the catheter. I have had Foley along for the ride 24/7 since the transplant surgery and was most anxious for his (painful) removal. It went better than expected and my next task was to produce some measurable proof that everything was working correctly. Sad to say it was not forthcoming. I asked "what next?" and was told they "would put another one in." "You're kidding, right?" I said as waves of fear swept over me like a tsunami. She was not kidding however and Mr. Foley's smaller but equally lethal younger brother was trotted out. It again turned out better than expected, but the younger Mr. Foley will be my constant companion until next Tuesday.
This morning we did lab work and so far nothing horrible has happened. For the last few days I have been waking up with fearsome body aches in my neck, shoulders. back and arms. That is what has prompted the drug changes the few days. I hope it works, I am fairly miserable. I would be thrilled to avoid ED this weekend as well.
Bob/Irv
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RJ/Bob/Irv is a 61-year-old beloved husband, father, uncle, brother, motor racing fanatic, and Livermore resident who received a heart and kidney transplant in February of 2010. Bob's recent years have been defined by his health, which forced him into early retirement. Unfortunately, many of his days were spent in a dialysis center or at various medical appointments, primarily due to his living with diabetes for over 40 years. Numerous were panic visits to various Emergency Rooms all over California for treatment of chest pain. But now no more dialysis and no more late-night dashes to UCSF! The main focus of Bob's family, friends, and doctors has been a prompt transplant, so that he can get back to traveling with his Sweetie, driving fast cars, enjoying great music and laughing with his friends. This blog will function as a way to communicate with all interested parties and to keep everyone informed. And hopefully it can serve a great purpose also, in making people more aware of the importance of organ donation and how each life saved has a positive effect on dozens of related friends and relatives.
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