Bob is not in the mood to blog at all today, so I have the honor of sharing the news that once again, his catheter was removed, and once again, another one took its place an hour later. Very discouraging.....seems like the years of dialysis and then lengthy catheter time is resulting in a referral to yet another department at UCSF: Urology.
Not sure where an extra appointment will be squeezed into our schedule, but we'll make room for it.
His muscle weakness was even worse today, and he traded in his walker for a wheelchair to get into and out of the clinic - both times we went. After the un-fun kidney transplant department visit, we had to return for another ultrasound of the kidney incision area, as the leakage is continuing. The rest of his stitches were removed and the rest of the incision has healed nicely....just the part left open to drain is still draining, and draining, and draining. The coordinator called with the news that he's very anemic also, which may be contributing to the weakness and fatigue, so he will be starting on injections of Procrit in addition to the iron pills that were prescribed.
Tomorrow morning Bob is to report at 6:30 am for his 4th heart biopsy, extra early so that his heart transplant surgeon can take a look at that kidney incision personally and get his take on the situation. Of course we know that the arrival time is no guarantee of when the biopsy will actually take place ( not that we're bitter or grumpy).
Last bit of news is that Bob will get checked over by the Gastro-Intestinal team next week to figure out why he's having pain so often when eating and swallowing.
This is certainly a rockier road (post-transplant) than we anticipated, although we never expected everything to be easy. Something in the middle would be preferable......will try for a more positive spin tomorrow.
No comments:
Post a Comment