We have now survived an entire week on our own ( sort of) since Bob was released from the hospital. We are hoping for an entire 2 days free of any kind of clinic or ER visit this weekend. We went in for this morning's lab work, then the home nurse visited mid-day to change dressings and generally check him over. We were excited at the prospect of the rest of the afternoon and evening to ourselves.........me to spend some time working, and Bob to read and rest. We did get about 2 hours, then got a call to come in for an ultrasound to check out the continual leaking from his kidney incision. Luckily we got in and out pretty quickly and now are in the process of feeling like we have a weekend.
The follow-up call after the ultrasound was that no specific action will be taken at this point - nothing alarming was found. We just have to keep things as dry as possible and watch for any signs of infection, which of course we are doing constantly anyway. Some blood pressure meds have been decreased, since Bob is having light-headedness way too often when he gets up from lying or sitting.....just like before the transplant, so that's not fun.
He's had some trouble swallowing and some pain in his throat and chest which has been diagnosed as a form of Thrush - something very common in immune-suppressed people. The new prescription for that seems to be doing the job.
But these little ups and downs are part of the process and now that I've caught up on my sleep I think we will cope better and better! He will also be more comfortable once that foley catheter is removed, which is scheduled for next Tuesday. The most important thing is that his rejection percentage is Zero again this week. And we are quite aware that in the big picture, life is going quite well!
You guys are amazing. Have a nice relaxing well-deserved weekend. You've earned it.
ReplyDeleteThoughts and prayers still coming your way. Especially those of Thanksgiving!