Thursday, February 25, 2010
Hospital Standard Time Strikes Again
Made the 8:00 am kidney clinic and they called me in pretty quickly. I was surprised since the waiting area was packed already. We told the doc we were scheduled at 9:00 in the heart and lung clinic. He was very concerned and we got out of there and up to heart/lung by 9:00.
During our wait we talked to a lot of heart transplant patients who come on Thursdays. One nice couple are from Manteca; he had his transplant last Thanksgiving which of course reminded us of that epoc day when Grandpa got his liver on Thanksgiving.
Well the time crawled on by before our eyes. We called our next appointment (infusion center) and asked their indulgence. They were not trippin'. The heart doc and substitute post-transplant coordinator rolled into the exam room about 11:00 am. There was a lot to talk about so we got up to the infusion center about 12:30. They were cool about it and I went on the IV about 1:00. Of course we had not eaten yet so I started to get that famous forced fasting sensation. Cheryl came through with a dash across the street to our favorite pannini place and I had enough time to wolf it down before the treatment.
Meanwhile events outside were going into the toidey. Cheryl was going back to 2000 Post to eat and do some work. I would be on the IV for 3-4 hours. She went to the valet to retrieve the Fit. It was a disaster at the curb with the parking guys telling people they were full. The cars were stacked 3 deep in the street. Then the guys were unable to locate the car. Finally it was found and Cheryl was off and running.
She took a call from the coordinator. They were adding a new med but were having it trouble getting insurance coverage. Cheryl pointed out that we had a supply at home from my previous stash. So she called Robin at work. She gave her a "shopping list" and they set up for a "drug deal" in Dublin. The drop went down smoothly and the pills were spirited on to SF. Thank you again Robin and Robin's very gracious boss.
A big concern is that all this time since we moved in here I have been constantly draining a clear liquid from my kidney incision and the puncture from last week's biopsy. Despite all sorts of pads, tape, gauze and bandages it is not stopping. There are a couple fixes but the word "surgery" was mentioned. Not good.
OK enough already. We are hoping tomorrow is mellow (labs only) and we can get some stuff done.
Bob/Irv
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RJ/Bob/Irv is a 61-year-old beloved husband, father, uncle, brother, motor racing fanatic, and Livermore resident who received a heart and kidney transplant in February of 2010. Bob's recent years have been defined by his health, which forced him into early retirement. Unfortunately, many of his days were spent in a dialysis center or at various medical appointments, primarily due to his living with diabetes for over 40 years. Numerous were panic visits to various Emergency Rooms all over California for treatment of chest pain. But now no more dialysis and no more late-night dashes to UCSF! The main focus of Bob's family, friends, and doctors has been a prompt transplant, so that he can get back to traveling with his Sweetie, driving fast cars, enjoying great music and laughing with his friends. This blog will function as a way to communicate with all interested parties and to keep everyone informed. And hopefully it can serve a great purpose also, in making people more aware of the importance of organ donation and how each life saved has a positive effect on dozens of related friends and relatives.
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